I’ve created this page as a place to share information and to find others who are living with Morgellons. I hope it will become a valuable reference.
I opened this page a year ago, and not had much response, but I have a new slant on Morgellon’s to share. I now have the fibers, red and blue, coming out of undamaged skin, and somehow they make their way across my skin, leaving a row of little dots behind. I don’t have my camera with me at the moment, but as soon as I do, I’ll post a couple of pictures.
BTW, my wound care NP turned me on to Calmoseptine — a cream that ameliorates the itching, though nothing stops it all together. It’s just zinc oxide and menthol, but it works somewhat for me. Might be worth a try.
Concerning proving its existence in my skin to doubters:
During my appointment with my diabetes NP, yesterday, I noticed an unusually dark red fiber emerging from an old scar on my left arm. As it turns out, my NP had made quite a study of Morgellons during the time since my first visit. She asked me about the disbelief factor with my doctors, and I told her how I agonized over it until I spoke with a nurse psychiatrist, who believed me. Then, I was able to relax, and I relaxed further when I took photographs that plainly showed the fibers when enlarged as far as they could go. Now that I had that proof, I stopped needing to try to prove anything to my doctors.
But, when I found such an obvious example, I decided to try again. Wonder of wonders, my NP saw the fiber, then was able to see others I pointed out. For months, I dreamt of just such acceptance. So, two medical professionals have identified the irrefutable truth — Morgellon’s is not in my head. (Well, it most likely is in my head, as I have fibers everywhere on and coming out of my body, but I mean not my imagination.) Who’s to say what might happen next?
If any of my fellow morgellon-ite readers would like to share your stories, comment here, and I will put you on the list of guest authors, so you can post on this page. In the meantime, tranquility to all of us in our efforts to prove that we don’t have group delusional parasitosis.